A7845 (2025-26 session)
NY State bill
Requires the department of health to establish a registry for the collection of information on the incidence and prevalence of amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) in the state; requires that every physician, nurse practitioner, physician assistant and general hospital that diagnoses or treats a patient diagnosed with ALS or MND give notice to the department of cases of ALS or MND coming under their care; requires that patients diagnosed with ALS or MND be provided with written and verbal notice regarding the collection of information and patient data on ALS and MND and provides a method for patients to opt out of the collection of data; provides for duties of the department and the commissioner of health in relation thereto.
- Title
- Relates to establishing a state amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) registry
- Type
- New York State Assembly bill
- Session
- 2025-26 session
- Status
- Signed by Governor
- Latest action date
- 2025-10-17
- Introduced
- 2025-04-11
- Same as
- S6413
- Law section
- Public Health Law
Sponsors
Co-sponsors
Heard in committee
- Codes NY State Assembly committee
- Health NY State Assembly committee
- Rules NY State Assembly committee
- Ways and Means NY State Assembly committee
- Rules NY State Senate committee
Same as
- S6413 (2025-26 session) NY State bill
Substituted for
- S6413 (2025-26 session) NY State bill