S6413 (2025-26 session)

NY State bill

Requires the department of health to establish a registry for the collection of information on the incidence and prevalence of amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) in the state; requires that every physician, nurse practitioner, physician assistant and general hospital that diagnoses or treats a patient diagnosed with ALS or MND give notice to the department of cases of ALS or MND coming under their care; requires that patients diagnosed with ALS or MND be provided with written and verbal notice regarding the collection of information and patient data on ALS and MND and provides a method for patients to opt out of the collection of data; provides for duties of the department and the commissioner of health in relation thereto.

Title
Relates to establishing a state amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) registry
Type
New York State Senate bill
Session
2025-26 session
Status
Senate Floor Calendar
Latest action date
2025-06-04
Introduced
2025-03-13
Same as
A7845
Substituted by
A7845
Law section
Public Health Law

Sponsors

Co-sponsors

Heard in committee

Same as

Substituted by

Committee meetings

Committee meetings that took this bill up, from the Senate's published agendas. The Assembly does not publish its committee agendas in machine-readable form, so an Assembly committee's consideration of a bill is not on this list.

Sources